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Frequently Asked Questions Concerning Child Cancer and Blood Diseases Frequently asked questions regarding child Cancer and Blood Diseases
Compiled by Marina Molchanova, volunteer; Compiled Marina Molchanov, volunteers;
Edited by Dr. Mikhail Maschan, Head of the Department of General Hematology, Russian Children's Clinical Hospital, Moscow. Edited by Dr. Michael Maschan, Head of General Hematology, Russian Children's Clinical Hospital, Moscow.
This text was written to raise the public awareness of child cancer problems in Russia. This text was written to raise public awareness about the problems of children with cancer in Russia. Unfortunately, the broad public in the Russian Federation is poorly informed about these problems, because representatives of the mass media either try to avoid such painful and ambiguous topics or have inadequate or insufficient information themselves. Unfortunately, the general public in the Russian Federation is poorly informed about these issues because the media, or try to avoid the painful and ambiguous way or inadequate or insufficient information on their own. As a result, the public opinion is often full of obsolete views and harmful superstitions, which impede organization of serious charity events for the benefit of ill children in Russia. As a result, public opinion is often full of outdated attitudes and harmful superstitions, which make it difficult to organize major fundraising events for the benefit of sick children in Russia. The situation has started changing only during the last few years, and our goal is to contribute to this process. Things began to change only in the last few years, and our aim is to contribute to this process.
However, we believe that this text may also be helpful for readers in other countries who want to know more about the situation with child cancer in Russia and in other countries of the former Soviet Union. However, we believe that this text can also be useful for readers in other countries who want to know more about the situation of child cancer in Russia and other former Soviet countries. We hope that some of them may wish to help these children and we will find new friends. We hope that some of them may wish to help these children, and we will find new friends.
How come that children have cancer? How that children have cancer? Does this apply only to kids who have been exposed to radiation or live in especially unhealthy conditions? Does this apply only to children who are exposed to radiation or live in a particularly hazardous conditions?
Unfortunately, children sometimes have cancer. Unfortunately, children sometimes cancer. The annual occurrence rate is about 10 to 15 cases per 100,000 children. Annual rate of occurrence of about 10 to 15 cases per 100000 children. This means about 3000 new cases all over Russia each year, plus other 1000-2000 children whose conditions are not cancer per se but their treatment may be similar to that of cancer (aplastic anemia, histiocytosis, Fanconi's anemia, certain hereditary metabolic disorders, etc .). This means about 3000 new cases across Russia every year, 1000-2000, plus other children whose conditions are not cancer per se, but their treatment may be similar to cancer (aplastic anemia, histiocytosis, Fanconi anemia, certain hereditary metabolic diseases, and t . etc..).
The majority have blood cancer (various types of leukemia). Most of them have blood cancer (various types of leukemia). Less frequent conditions are solid tumors of the central nervous system, lymphatic system (non-Hodgkin and Hodgkin lymphomas), bones, or various organs (kidney, liver, etc.). Less frequent conditions are solid tumors of the central nervous system, lymphatic system (non-Hodgkin and Hodgkin lymphoma), bone and various organs (kidney, liver, etc.).
Various kinds of kids may fall ill. Different types of children can get sick. Boys and girls, babies and teenagers, sturdy and slender, in cities and in the countryside, from rich and poor families. Boys and girls, children and adolescents, a strong and slender, in the cities and countryside, rich and poor families. There is no way to guarantee that one or another child will never have cancer. There can not guarantee that a child will never be cancer.
Why do you think that problems of child cancer are so important for the Russian society? Why do you think that the problems of children with cancer are so important for Russian society? Isn't this disease too rare to speak about? Is not that the disease is too rare to say?
In the Russian Federation, cancer is the second main cause of death among children from 5 to 15, after accidents (injuries, poisonings, etc.). In the Russian Federation, cancer is the second leading cause of death among children aged 5 to 15 years after the accident (injury, poisoning, etc.). We can hardly do anything about accidents, but many patients with cancer can survive if they receive real help. We can hardly do anything of the accident, but many patients with cancer can survive if they receive proper assistance.
At the same time, the parents 'and the doctors' efforts are often insufficient to save a child with cancer in Russia. At the same time, parents and the doctors' efforts, often not enough to save the child with cancer in Russia. Contemporary treatment of leukemia or lymphoma is very expensive. Modern treatment of leukemia, lymphoma is very expensive. It includes not only numerous transfusions of blood components but also purchase of expensive drugs. It includes not only numerous transfusions of blood components, but also the purchase of expensive drugs.
And the situation with expensive high-tech treatment in Russia is generally complicated. And the situation with expensive high-tech medical treatment in Russia in general complicated. During many months of treatment, an average Russian family exhausts all its resources and needs the help of volunteers and sponsors. During the many months of treatment, the average Russian family exhausts all its resources and needs the assistance of volunteers and sponsors.
Naturally, other caterogies of children also need help. Naturally, other caterogies children also need help. For example, we can mention those who are in the waiting list for kidney transplantation and have to receive dialysis for many months. For example, one can mention those who are in the waiting list for a kidney transplant and had to receive dialysis for many months. Or children with cystic fibrosis and other hereditary disorders. Or children with cystic fibrosis and other hereditary disorders. Or those who have serious heart or liver problems. Or those who have serious heart or liver disease. Volunteer groups for helping such children are also functioning in Russia. Volunteer groups to help these children function well in Russia.
However, throughout the world, organization of wide-scale fundraising for ill children usually starts from child cancer. However, the worldwide organization of large-scale fundraising for sick children usually starts from childhood cancer. And the situation in the former Soviet Union adheres to this general rule. And the situation in the former Soviet Union adheres to this general rule.
Is child cancer curable? Is a children's cancer can be cured? Popular Russian books on medicine, even those recently published, state that leukemia or lymphoma is fatal and treatment can only prolong the painful agony. Popular Russian books on medicine, even those who have recently published a claim that leukemia or lymphoma is fatal and treatment can only prolong the agony of pain.
No, this is totally wrong! No, this is absolutely wrong! Child cancer can often be successfully cured now. Child cancer can often be successfully treated today. In Western Europe, this became true in the 1980s, when more efficient chemotherapeutic protocols were introduced. In Western Europe, this was true in 1980 when they were introduced more effective chemotherapeutic protocols. They reached Russia in the 1990s, and the situation started changing at once. They came to Russia in the 1990's, and the situation began to change immediately. Surgical and radiotherapeutic techniques are also improving. Surgical methods of radiation therapy and are also improving.
In Western countries, up to 80% children with cancer can presently be cured. In Western countries up to 80% of children with cancer now can be cured. In Russia, the long-term survival rate is just above 50% (higher in advanced clinics, lower in poor regional ones). In Russia, a long-term survival rate of slightly above 50% (higher in the advanced clinics, lower in poor regional). In third-world countries, it hardly exceeds 20%. In third world countries, it barely exceeds 20%.
So, helping in purchase of expensive drugs and equipment, mobilizing the public and the ill children themselves for struggle against the disease, we have a chance to save hundreds of kids each year, achieving the desired 80%. Thus, assisting in the acquisition of expensive drugs and equipment to involve the public and themselves ill children to combat the disease, we have a chance to save hundreds of children every year, achieving the desired 80%. There are enough qualified specialists in Russian medicine, but difficulties are due to insufficient financing, shortage of donor blood, and organizational problems. There are enough qualified specialists in Russian medicine, but the difficulties associated with inadequate funding, shortage of donor blood, and organizational problems.
Now the idea of child cancer incurability is already obsolete but still alive, because the public in Russia is not informed enough. Now the idea of the child incurable cancer already obsolete, but still alive, because the public in Russia is not informed enough. The Russian mass media often fail to provide trustworthy information on such a difficult and painful problem as cancer. Russian media often do not provide reliable information about such a difficult and painful problem, like cancer. And if child cancer is called incurable in a popular medical book, it is probably just a new edition of some old book, where new data is not taken into account. And if the child cancer is incurable in the popular medical book, probably the only new editions of old books, where new data is disregarded.
When you speak of curability, do you mean complete recovery? When you talk about cure, you mean a full recovery? I thought that such a disease as cancer may only recede for some time and then return again. I thought that diseases such as cancer, can only withdraw for a while and then come back again.
One should indeed distinguish complete recovery from remission (temporary disappearance or reduction of clinical symptoms). Should distinguish truly complete recovery after remission (a temporary loss or reduction of clinical symptoms). But presently we actually speak of recovery. But now we are really talking about reconstruction. In most oncological diseases, a child is regarded as healthy when he or she has lived five years without recurrences after the completion of treatment. In most cancers, the child is considered healthy, if he or she lived five years without recurrence after treatment. The probability of a later recurrence is low in this case, hardly higher than the probability of a new case of cancer in a previously healthy child. The probability of recurrence of the latest low in this case, hardly higher than the probability that a new case of cancer in previously healthy children.
Will the survivors have a normal life? Will the survivors have a normal life? Or will they be seriously disabled for ever? Or they will be seriously disabled forever?
Virtually all such survivors are intellectually normal. Practically all still survive intellectually normal. In most cases, their physical condition is also satisfactory. In most cases, their physical condition as satisfactory. They can study, play with other children, indulge in sports, just as any other kids. They can learn, play with other children, play sports, as well as any other children. When they grow up, they may work, marry, and have children. When they grow up, they can work, marry and have kids.
Of course, serious complications after the treatment are also possible. Of course, serious complications after treatment, it is also possible. Some survivors have problems with their vision, kidney, musculoskeletal system, or reproductive health. Some of the survivors have problems with your vision, kidneys, musculoskeletal system, or reproductive health. But, on the whole, it is not true that all cancer survivors will remain gravely ill for ever. But, in general, it is not true that all cancer survivors will continue to be seriously ill than ever. Moreover, due and timely treatment makes it possible to cope with many complications. In addition, proper and timely treatment can deal with many complications.
But why do adults with leukemia or lymphoma have a much lower survival rate? But why adults with leukemia, lymphoma have a much lower survival rate?
Contemporary protocols of cancer treatment are very hard for the human organism. Current treatment protocols for cancer is very difficult for the human body. Children and adolescents can more or less completely recover after such treatment, but the chances are lower in the middle or old age. Children and adolescents may be more or less full recovery after being treated, but the chances are lower middle or old age. Treatment itself may just kill such people. The treatment itself can just kill these people. And if "milder" protocols are used, the chances to conquer the disease are lower. Used when "soft" protocols, the chances to defeat the disease below.
I have examined some Russian sites of charitable foundations concerning children with cancer. I studied Russian Some sites charities relating to children with cancer. And it is easily seen that dozens and hundreds of children shown on each of these sites eventually die. And it is easy to see that tens and hundreds of children, showed each of these sites will eventually die. Where are the survivors, where are these 80% or at least 50%? Where to live, where these 80% or, at least by 50%?
Children shown on such Web sites are usually those who have especially serious problems (rather than those whose treatment goes more or less as planned). Children shown on such sites, usually those who are particularly serious problems (rather than those whose treatment is more or less according to plan). These are just the children who cannot survive without active help of donors and sponsors. These are just kids who can not survive without the active assistance of donors and sponsors. Their chances are notably lower than average, but, with this help, an increasing number of them can still be saved. Their chances are markedly lower than average, but with this aid, a growing number of them can still be saved.
Besides, some of the children died not because their condition was hopeless indeed but just because they didn't receive due help in time. In addition, some children did not die because their condition was hopeless, but really only because they do not receive help because of the time.
Another aspect is psychological. Another aspect is psychological. If a patient is dead, everybody knows it at once. If the patient is dead, everyone knows it at once. And if a patient has survived, many years may pass before one can say that he or she is healthy. And if the patient survives, there may be many years before we can say that he or she is healthy. Partly this "precaution" is due to medical reasons, partly just to superstition. Part of the "precautionary measure" is for medical reasons, and partly just a superstition.
If I decide to help a child financially, I may want to know his or her chance of survival. If I decide to help your child financially, I want to know his or her chance of survival. Is there any way to estimate it? Is there a way to measure it?
It is usually impossible to predict the outcome of the disease in each given case. It is usually impossible to predict the outcome of the disease in each case. Sometimes almost hopelessly ill children survive, sometimes relatively "safe" suddenly die. Sometimes almost hopelessly ill children to survive, sometimes relatively "safe" suddenly die. Nevertheless, there can be some estimates based on statistical data, although they are not very easy to make. Nevertheless, there can be some estimates based on statistical data, although they are not very easy to do. For example, in the case of leukemia, much depends on the type of leukemia, general condition of the patient, development of complications, day after which the remission is attained during primary treatment, etc. If we speak of a solid tumor of one or another organ, the survival rate depends on its type, stage, and localization. For example, in the case of leukemia depends on the type of leukemia, the general condition of the patient, the development of complications, which day after remission is achieved with primary treatment, etc. If we are talking about a solid tumor or other body, survival depends on its type, stage and localization.
On the whole, the survival rate in acute lymphocytic leukemia is up to 80% in good hospitals. Overall survival rate for acute lymphocytic leukemia to 80% in good hospitals. For patients with most non-Hodgkin lymphomas, it may reach 80-85%; for those with Hodgkin's disease, it may even exceed 90%. For most patients with non-Hodgkin's lymphoma, it can reach 80-85% for those with Hodgkin's disease, it may even exceed 90%. The survival rate for Wilms' tumor (kidney cancer) is up to 60-70%; for osteogenic sarcoma or Ewing's sarcoma, it is about 50-60%; etc. At the same time, there are certain types of cancer with a poor prognosis. The survival rate of Wilms' tumor (kidney cancer) is up to 60-70% for osteogenic sarcoma and Ewing's sarcoma, this is about 50-60%, etc. At the same time, there are certain types of cancer with poor prognosis.
Only an experienced physician can make a qualified estimate of each patient's chances. Only an experienced doctor can make a qualified assessment of the chances of each patient. But even in very serious cases, when the chances are 25% or lower, there is still a lot of sense in fighting. But even in very serious cases, when the chances of 25% or below, there is still a great deal of sense in the fighting. Twenty-five percent is not zero, and we know children who survived with an even worse prognosis. Twenty-five percent is not zero, and we know that children who survived with a worse prognosis. After all, this is how medicine develops: at first we can cure only 5% patients with a certain condition, then 25%, then 50%, and then 99%. In the end, this medicine is developed: first, we can treat only 5% of patients with certain conditions, then 25%, 50%, then 99%.
Why are such severe schemes always used for the treatment? Why such major schemes are always used for the treatment? Maybe folk medicine, herbal treatment, or homeopathy would also be helpful and less hard to endure? Perhaps, folk medicine, herbal medicine, homeopathy and would also be useful and less difficult to endure?
Medicine knows no or almost no cases where cancer would be completely cured by alternative methods. Medicine does not know or almost no cases where the cancer is completely cured by alternative methods. Indeed, if these methods were efficient, leukemia or lymphoma would not have been regarded as a fatal illness before the introduction of contemporary chemotherapeutic techniques. Indeed, if these methods were effective, leukemia, lymphoma, it would not be regarded as a fatal disease before the appearance of modern chemotherapeutic methods. Whereas, actually, the survival rate before their discovery was much below 5%. While, in fact, survival to their discovery was well below 5%.
Moreover, a real problem in Russia is the activity of various "healers" who convince people to take their children from hospitals and use alternative methods for cancer treatment. In addition, the real problem in Russia is the work of various "healers" who convince people to take their children out of the hospital and the use of alternative treatments for cancer. As a result, many children who could survive after conventional treatment have already died because of these irresponsible people. As a result, many children who could survive after the usual treatment have already died because of these irresponsible people.
Why do most Russian charity Web sites concentrate on fundraising for children who receive treatment for cancer in Moscow or St. Petersburg? Why do the majority of Russian charity sites focus on raising funds for children receiving treatment for cancer in Moscow or St. Petersburg? These cities are rich, not only by Russian but even by international standards, and they could well solve their problems by themselves, couldn't they? These cities are rich, and not only Russian, but even by international standards, and they may solve their problems by themselves, they could not? Probably only regional hospitals in Russia need financing indeed? Perhaps the only regional hospital in Russia in need of funding, in fact?
This is not true, because hospitals in Moscow and St. Petersburg actually treat patients from all Russian regions. This is not true, because in the hospitals of Moscow and St. Petersburg actually treat patients from all Russian regions. Moveover, patients who get there usually have the most complex and aggressive forms of the diseases, which cannot be cured at at local hospitals. Moveover, patients who receive it, as a rule, the most complex and aggressive form of the disease which can not be treated at local hospitals. For example, the Russian Children's Clinical Hospital in Moscow mostly takes children from provincial regions, and the majority of its patients are from poor and socially underprivileged families. For example, Russian Children's Clinical Hospital in Moscow, is mostly children from provincial areas, and most of its patients from poor and socially disadvantaged families.
Throughout Russia, only centers in Moscow and St. Petersburg can provide some kinds of advanced, state-of-the-art treatment. Across Russia, but Moscow and St. Petersburg can provide certain types of modern, state-Of-The-Art Treatment. For example, marrow transplantations could be conducted only there until recently. For example, bone marrow transplant can be performed only there until recently. But even these centers often suffer from a shortage of necessary drugs or equipment. But even these centers often suffer from lack of essential drugs or equipment.
Naturally, you are right in saying that regional hospitals are also in grave need of financial help. Naturally, you are right in saying that regional hospitals are also in serious need of financial assistance. And some charitable programs and events aimed at providing this help have already been organized. And some charitable programs and activities aimed at providing this assistance has been organized by. We hope that this work will develop further. We hope that this work will be further developed.
As is known, the Russian state provides free-of-charge chemotherapy for children with cancer within the so-called compulsory medical insurance program. It is known that the Russian state provided free of charge chemotherapy for children with cancer in the framework of the so-called program of compulsory medical insurance. So why do you say that these children need sponsors? So why do you say that these children need sponsors?
Some of the necessary drugs are often lacking at hospitals. Some of the necessary drugs are often lacking in hospitals. For example, this refers to contemporary antifungal drugs and antibiotics, which help the patients cope with severe infectious complications (often occurring owing to low immunity of children after chemotherapy). For example, this applies to modern antifungals and antibiotics, which help patients cope with serious infectious complications (often occurs because of low immunity of children after chemotherapy). Such medicines are not provided by the budget and have to be bought by the patients' parents or by sponsors. These medicines are not included in the budget and should be bought by patients parents or sponsors. The patients' families also have to pay for a number of tests and examinations, such as computed tomography. Patient's family also have to pay for a number of tests and exams such as computed tomography. The same is true for part of expenses associated with bone marrow transplantation. The same applies to the portion of the costs associated with bone marrow transplantation. During the many months of treatment, an average Russian family usually exhausts all its means to such an extent that even buying food and clothes becomes a real problem, to say nothing of expensive medicines. During the many months of treatment, the average Russian family is usually exhausted all their resources in such an extent that not even buy food, and clothing becomes a real issue, not to mention the expensive medication.
The financial issues are analyzed here in more detail. Финансовые вопросы анализируются здесь более подробно.
Why do doctors and patients ask for expensive drugs even if cheaper analogs are known? Why do doctors and patients are asked to expensive drugs, even if known, less expensive counterparts?
Oncologists do not prescribe expensive medicines if there is good chance to cope without them. Oncologists do not prescribe expensive drugs when there is a good chance to cope without them. But often there is no such chance. But often there is no such chances. For example, contemporary antifungal drugs, such as Ampholip, Cancidas, or Vifend, are very expensive, but it is often impossible to replace them by cheaper medicines owing to lower efficiency and much higher toxicity (renal or hepatic) of these analogs. For example, modern antifungal drugs, such as Ampholip, or Cancidas Vifend, are very expensive, but it is often impossible to replace them with cheaper drugs because of low efficiency, higher toxicity (renal or hepatic failure) of these analogues. The same is true for antibiotics, which are used to fight bacterial complications. The same applies to the antibiotics used to combat bacterial complications.
There are also generics (eg, produced in India), but their efficiency and degree of purity are also notably lower in comparison with original drugs. There are also generic (for example, produced in India), but their effectiveness and purity, also markedly lower in comparison with the original drug. Besides, some of such drugs are clearly counterfeit. In addition, some of these funds is clearly false.
That is, the use of cheap drugs may be fatal for a child who is literally between life and death. That is, the use of cheaper drugs could be fatal for a child who is literally between life and death.
Why don't regional budgets in Russia pay for the children's treatment? Why do not regional budgets in Russia to pay for the treatment of children?
Actually, there is some help from the authorities. In fact, there is some help from the authorities. Sometimes the local public health department provides part of the sum required for a child's treatment. Sometimes the local health department provides a portion of the amount needed for treatment of the child. Or the Russian Ministry for Public Health and Social Protection provides two-thirds of the sum for treatment abroad if a child needs this treatment for survival and falls within a special quota. Or Russian Ministry of Health and Social Welfare provides two-thirds of the amount of medical treatment abroad, if the child is in need of this treatment for survival and falls into a special range. But life shows that receiving complete budgetary supply is still impossible in Russia in the case of expensive treatment. But life shows that obtaining the full budget delivery is impossible in Russia and in the case of expensive treatments. The money allotted by the state for medicine is insufficient in any case, and private support is necessary. The money allocated by the State for drugs is inadequate in any case, and private support is needed.
If advanced treatment of child cancer is possible in Russia, at least in several large centers, why is fundraising for treatment abroad sometimes organized? If advanced methods of treatment of childhood cancer is possible in Russia, at least in a few large centers, why raise funds for treatment abroad sometimes organized?
The level of child cancer treatment in Russia is fairly high indeed. Level of child cancer in Russia is quite high. And sometimes treatment abroad has no serious advantages in comparison with treatment in Moscow or St. Petersburg. And sometimes treatment abroad has serious advantages as compared with treatment in Moscow or St. Petersburg. But in other cases it may be vitally necessary. But in other cases it may be vital. Certain foreign clinics provide procedures (eg, special kinds of surgery or radiation treatment) that are not yet available in Russia but can be beneficial for curing one or another specific condition. Some foreign clinics offer the procedure (for example, special types of surgical or radiation therapy) that are not yet available in Russia, but may be useful for treating a particular condition. But usually the reasons are organizational. But usually the organizational reasons. Leading Russian clinics just haven't enough beds to take all patients who need advanced kinds of treatment. The leading Russian clinics are simply not enough beds to take all patients who need advanced treatments.
For example, until recently, only three hospitals in Russia performed bone marrow transplantations. For example, until recently, only three hospitals in Russia is carried out on bone marrow transplantation. There are waiting lists, and it often takes months before transplantation to one or another patient can be made. There are waiting lists, and it often takes a month before the transplant in a given patient can be done. But marrow transplantation must often be performed very urgently if the disease is especially aggressive and there is real danger of fast relapse. But bone marrow transplants must often be done very quickly, if the disease is particularly aggressive, and there is a real risk of rapid relapse. There have been several tragic cases with Russian children: some of them died while waiting for the transplantation, although a donor had already been found and funds had been raised. There were some tragic cases with Russian children: some of them died awaiting transplants, although the donor had been found and the funds were raised. Abroad, eg, in Israel or Germany, there are many more suitable hospitals and urgent treatment is possible. Abroad, for example, in Israel or in Germany, there are many more suitable hospital and urgent treatment is possible. But much more money is required. But it takes much more money.
Many children show on charity Web pages are already in such condition that their chances of survival are very low. Many children show for charity web pages are already in such condition that their survival chances are very low. Yet the fundraising for them continues. Nevertheless, the collection of funds for them continues. Why? Why?
Sometimes even the most gravely ill patients recover after intensive treatment. Sometimes even the most seriously ill patients recover after intensive treatment. If the physicians believe that there is still a chance, at least a slight one, the treatment must be continued. If doctors believe that there is still a chance to at least one small, the treatment must be continued. Also, it is very important for an ill child and for this child's family to feel that they are not left alone, that somebody is ready to support them to the end. In addition, it is very important for a sick child and family that your child feel that they are not left alone, that someone is prepared to support them until the end. Many parents who have lost their children say that the thought of this support gave them courage and strength. Many parents who have lost their children, said that the idea of this support has given them courage and strength. But, of course, the authors of charity sites must inform the readers of the patients' condition in time and should not conceal the sad news. But, of course, the authors of charity websites should inform readers about the patient's condition over time and should not hide the sad news.
How can one distinguish real, working charity sites in the Internet from fake ones? How can we distinguish real working charitable sites on the Internet from fake?
It is a serious problem, because various hoaxes appear regularly, and Russia is no exception. This is a serious problem, because the various hoaxes appear regularly, and Russia is no exception. But we can give some advice. But we can give some advice.
A Web site aimed at fundraising should necessarily contain not only the numbers of the electronic wallets and the E-mail address but also other coordinates for verifying the information. Web site aimed at collecting funds must contain not only the number of electronic purses, and e-mail address and other coordinates to verify the information. For example, if the authors of the site are busy with fundraising for a certain ill child, the site should specify the name and location of the hospital, the name and phone number of the physician in charge of the case, possibly a copy of the case history, etc. If the Web site belongs to a foundation, it should specify not only the banking details but also the address and phone / fax number of the office, the names of the founders, possibly copies of statutory documents, etc. For example, authors of the site are busy raising funds for some of the sick child, the site must specify the name and location of the hospital, the name and telephone number of the doctor in charge of the case, perhaps a copy of the medical history, etc. If the Web site is owned fund, he must not only use the bank details and address and phone / fax office, the names of founders, possibly, copies of constituent documents, etc.
Of course, if an announcement in the Internet does not conform to these requirements, it is not necessarily a fraud. Of course, at the announcement on the Internet fails to meet these requirements, it is not necessary deception. Maybe the author is just inexperienced and has no idea of how such a site should look. Perhaps the author simply inexperienced and have no concept of how a website should look like. But, in any case, such announcements seem suspicious and should be verified. But in any case, such statements seem suspicious and should be checked.
On the contrary, some Russian Web sites concerning charity and fundraising are already well-known and have good reputation, which has been gained over many years. In contrast, some Russian sites about philanthropy and fundraising is already well-known and have a good reputation, which had accumulated over many years. Some of them are listed here: Some of them are listed below:
Грант фонда жизни
Help Group of the Russian Children's Clinical Hospital Помощь группе клинической
больницы Русский детский
Children and Parents against Cancer Дети и родители против рака
AdVita Foundation Фонд АдВита
Nastenka foundation Настенька фонд
Life foundation Жизнь Фонда
Happy World foundation Счастливый Мир фонд
Pomogi.Org foundation Pomogi.Org фонд
Sometimes it happens that authors of fraudulent sites take case histories of real children from known Web sites but supply their own account / e-wallet number and sometimes even change the children's names. Sometimes it happens that the authors of fraudulent sites are taking real stories of children from well-known web sites but to supply their own account / E-wallet number and sometimes even changed the names of the children. To exclude this kind of fraud, it may be appropriate to use some Internet search engine and check if other sites telling about the same children (or containing stories written in the same words) actually exist. To avoid this type of fraud, it would be advisable to use some search engine on the Internet and check if the other sites that tell of the same children (or that contain stories written in the same word) really exists. If yes, the banking details should be compared. If so, the bank details must be compared. And if you indeed encounter a site that duplicates the information given in the Web sites of the above list but provides suspicious information about money transfer details, please inform the administrator of the original site, so that appropriate measures could be taken. And if you're really confronted with the site, which duplicates the information contained in the sites in the list above, but also provides detailed information about suspicious money transfers, notify the administrator of original site, so that appropriate action can be taken.
What is bone marrow transplantation and why does it require such a lot of money? What is a bone marrow transplant and why he needs so much?
Bone marrow transplantation (BMT), or hematopoietic stem cell transplantation (HSCT), is a treatment method that sometimes makes it possible to cure the most aggressive forms of oncological diseases, such as certain kinds of leukemia or lymphoma, and also other grave conditions, such as aplastic anemia, primary immunodeficiencies, or hereditary metabolic disorders. Bone marrow transplantation (BMT) or hematopoietic stem cell transplantation (HSC) is a method of treatment that can cure some of the most aggressive forms of cancer, such as certain types of leukemia and lymphoma, as well as other serious conditions such as aplastic anemia, primary immunodeficiencies, or hereditary metabolic disorders. Since bone marrow transplantation is very hard for a patient and extremely risky, it is generally used as a last-resort therapy in cases where any other ways of efficient treatment are impossible. After transplantation of bone marrow is very painful for the patient, and extremely risky, as a rule, used as a last-resort treatment when all other means of effective treatment impossible. The average survival rate after BMT is about 50%, although it largely depends on the kind of disease and increases on average. Average survival after BMT is about 50%, although this largely depends on the kind of disease and increases in the average.
There are different types of marrow transplantations. There are different types of bone marrow transplantation.
During autologous transplantation, the patient receives his or her own bone marrow cells. In autologous transplantation, the patient receives his or her own bone marrow cells. That is, these cells are taken from the patient (harvested), then the patient receives extra-high-dose chemotherapy (which must kill the tumor tissue but also irrevocably damages the bone marrow), and then the previously harvested and specially processed cells are "returned" to the patient in order to restore the functioning of the bone marrow. It is these cells taken from patients (harvested), the patient will receive an additional high-dose chemotherapy (which is to kill tumor tissue but also irreversibly damages the bone marrow), and then pre-assembled and specially-treated cells "returned" to the patient to restore the functioning of the bone brain. Such transplantations are mostly used in treatment of patients with malignant tumors, including solid ones. Such transplants are primarily used in the treatment of patients with malignant tumors, including solid Ones. But this method is often inapplicable or inefficient in other cases. But this method is often inapplicable or ineffective in other cases.
Allogeneic transplantations are transplantations from a donor. Allogeneic transplants are transplants from the donor. This donor can be related (usually a sibling, but sometimes one of the parents) or unrelated. This donor may be linked (typically brother but sometimes one parent) or not connected. In fact, the requirement is that the donor must be matching, ie, his or her cells must be immunologically compatible with the recipient's organism. In fact, the requirement that the donor must be relevant, that is, his or her unit must be immunological compatibility with the body of the recipient. If there is no such matching donor among the patient's relatives, search in international registries is conducted. In the absence of such conformity donor among relatives of patients, search the international registries maintained. Such search, activation of the donor (ie, harvesting of bone marrow), and transportation of the graft cost $ 17,000-25,000. Such a search, the activation of the donor (for example, harvesting the bone marrow), as well as transportation of the transplant to cost $ 17,000-25,000.
The transplantation procedure itself is not too complicated and resembles intravenous infusion. The transplantation procedure itself is not too complicated and resembles intravenous infusion. But the difficult thing is to provide due care to the patient before and after the surgery, because intensive chemotherapy makes the child susceptible to all kinds of infections, and other problems may also develop. But the difficult thing is to ensure the proper care of patients before and after the operation because of intensive chemotherapy makes the child susceptible to all sorts of infections and other problems may also develop. There must be complete sterility at the ward, to say nothing of numerous drugs and consumables. There must be a complete sterility in the ward, not to mention the numerous drugs and consumables. They also cost money, especially if infectious complications appear in spite of everything. They also cost money, especially if there are infectious complications, in spite of everything.
Actually, each BMT operation in Russia requires about $ 60,000-80,000 or even more, and only part of this sum can be provided by the state budget. Indeed, each operation of TCM in Russia requires about $ 60,000-80,000 or even more, and only a portion of this amount may be given to the state budget. Therefore, private sponsorship is needed in many cases. Thus, private sponsorship is necessary in many cases.
At the same time, such transplantation save dozens of children each year in Russia. At the same time, such a transplant to save dozens of children each year in Russia.
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